On my “Life with Autism” blog, it is my hope that the words you read are inspirational in some way. But on this blog — I wanted it to be different. I wanted the pictures to be more powerful than the words. Here will be some of our most powerful pictures in our “Life with Autism” – with only a few words to explain.
Doing away with vanity & dignity tonight.
I’m sure Brandon would forgive me if perhaps it would make one member of the mainstream media try and help him… I doubt they’ll ever see this, much like I doubt today’s seizures would be the last. But, one can hope….
He’s had seizures yet again today…and finally at 8pm he tried to get up. He’s been on the gymnastics mat on the floor of his bedroom right where he landed from the first seizure in falling out of bed this morning. Most parents have the luxury of waking up to the sound of an alarm. I frequently wake up to the sound of choking, some body part banging against the wall, or a loud thud as he hits the floor. I met him in the hallway and by the look in his eyes I knew we better go back in his room and not dare try and go downstairs. It’s hard to describe seeing your child like that. Hungry, or perhaps thirsty, wanting to just go downstairs to eat or drink, yet somehow not understanding why his body just isn’t willing to do what his mind wants. So, back in his room, we sat on the bench at the foot of his bed and I gave him his beloved straws and we listened to music. He dropped his straw and I watched as he tried to get it. His arm jerked this way and that. Eyes focused on the straw, arm focused on anything but. I was about to call down and ask Todd to bring something up for him to drink. To try and get some few precious calories in. But too late. The arm started jerking again, his head slumped, and his entire body curled up in a ball and started to convulse right there on the bench in my arms. All I could do was try and keep him steady…
