Jesse was born on August 17th, 2001. Other than the occasional cold or flu, Jesse was a fairly healthy child. Jesse does have a very mild form of asthma, one which he rarely ever had to seek treatment for. He had been diagnosed and believed by doctors to have ADHD. My husband and I did not believe Jesse needed any medical medication for his condition. Jesse has been able to manage going without resorting to medications for the ADHD.
From time to time, Jesse did have problems keeping his attention focused during class at school. However, he managed to work through these issues to complete his homework and assignments. Before being diagnosed with Narcolepsy (a condition characterized by an extreme tendency to fall asleep whenever in relaxing surroundings) and Cataplexy (a medical condition in which strong emotion or laughter causes a person to suffer sudden physical collapse though remaining conscious), Jesse had no major illnesses or hospitalizations. He participated in and played several sports including baseball and football, although his personal passion was football. It is important to note, Jesse never had any major hits to his head while playing football or baseball. He only had the normal football bruises from time to time on his arms and legs, but nothing major. He was a normal kid playing sports.
On August 13th, 2014, Jesse had a doctor’s appointment during which he received several vaccines. One of them, the one which we feel is the issue, was the human papillomavirus (HPV) vaccine, Gardasil. After his first injection, I started noticing small changes in Jesse’s sleep habits. He began staying up very late and had trouble falling asleep. My husband would come home late at night and early in the morning and stop by Jesse’s room to find him still awake and playing on his game system or phone. When asked why he was not asleep, he would tell us, “I can’t get to sleep” or “I’m not tired.” We initially thought this was just a phase he was going through.
My husband and I also noticed Jesse displayed additional symptoms as time went on. During football, Jesse would fall and later tell us, “My knee just gave out.” We started noticing him sleeping at odd hours during the day while still having difficulty sleeping at night. Jesse began having trouble staying awake in class at school.
Jesse’s sleep issues continued to get worse. He would frequently fall asleep while watching television with the family. Often when Jesse would have friends over, we would find Jesse sleeping and his friends doing whatever while he slept. We told him it was very rude to have friends over and sleep while he should be entertaining his friends. He would tell us he couldn’t help but fall asleep. My husband and I still thought Jesse was just going through a phase typical of those during teenage years.
In the summer of 2015, our family went on a vacation to Montana, by way of Utah, Wyoming and even South Dakota. We visited Yellowstone, Mount Rushmore, Crazy Horse Monument, and many other tourist attractions. Jesse’s sleeping issues continued throughout the entire trip. Things were at the point where my husband and I, along with my husband’s parents, began to understand there was probably a serious health issue involved with his new symptoms. It was not simply because he was a teenager.
We got home from vacation and Jesse began the new school year. It was his first year in high school, freshman year, and Jesse was excited. He could not wait for the high school experience and was extremely excited about participating in the fall football season. Jesse’s issues continued. He was having trouble staying awake during class and staying asleep at night. Jesse was having similar issues on the football field as well. He could hardly stay awake to practice his favorite sport.
My husband and I decided, enough was enough. We needed to have him checked out by doctors.
We took Jesse to his next doctor’s appointment on August 18th, 2016. On this date, his doctor, Loan Thuy Lu, stated she believed his sleeping and other issues were a problem of not being on a proper sleep schedule. Doctor Lu prescribed Melatonin in an attempt to help Jesse sleep during the night. The same day, Doctor Lu advised it was time for Jesse to get his second (HPV) shot. Since my husband and I had no idea this vaccine could have triggered Jesse’s new medical conditions, he received the shot.
After the second shot, things went from bad to worse for Jesse. He continued falling asleep all the time. Along with the issues stemming from his sleep problems, Jesse began having problems with his muscles and again with his knees buckling during football. He could hardly even stay awake and standing at football practice. We began to notice the Cataplexy in Jesse’s face when falling asleep at odd times. It looked like his facial muscles would just give out and then he would quickly fall asleep.
Jesse
Jesse started telling us that sometimes he would feel awake, but unable to move, as if he was paralyzed. Jesse started hallucinating and having nightmares. At times, I could hear him screaming from his room. I would quickly go to check on him only to find him fast asleep. There was one occasion where Jesse came into my room and told me he heard someone in the house like someone had broken in. I quickly got up and checked only to find no one had been in the house, no alarm was tripped, no doors or windows opened. I believe he was hallucinating.
We scheduled another doctor’s appointment, where the doctor advised us that Jesse displayed symptoms of Narcolepsy and set up a sleep study examination. Upon completion of the study, the doctor diagnosed Jesse with both Narcolepsy and Cataplexy. The doctor prescribed Adderall and Provigil to help keep Jesse awake during the day and Xyrem (HGB) to help him sleep at night.
My husband and I started to study and learn everything we could about Narcolepsy in order to better understand what was going on with our son and how to deal with his newly diagnosed conditions. During this same time period, we joined several online social media support groups. We were learning a lot from other parents who had children with the same conditions.
Also while researching narcolepsy and cataplexy, we discovered several things were causing Narcolepsy in people all around the world. Both conditions seemed to have connections with two vaccines, the H1N1 vaccine, and the Human papillomavirus (HPV) vaccine. Of course, when mentioning this to Jesse’s doctor, she quickly disregarded it.
Jesse has a really hard time trying to deal with the harsh reality of life with narcolepsy and cataplexy. He had to quit football and sports until we can figure out how to manage his medications effectively. Jesse had to enroll in a hybrid homeschool program to catch up from falling behind in school. Jesse is frequently depressed and still having problems staying awake during the day and sleeping at night, despite his medications. Jesse’s hallucinations and Cataplexy seem to be getting worse.
Getting my son to stay on a regular schedule of taking his medications is hard. At times he refuses because he is afraid of becoming addicted to the medication he’s been prescribed. He constantly says the medication does not work anyway.
Jesse has become depressed and has erratic mood changes. He has explained he believes his idea of the future has been swept away. Jesse had dreams of being a professional football player; following in his father’s footsteps in the military, or maybe becoming a police officer. Jesse has expressed that he has seen his future plans crumble before his eyes. Jesse has lost many of his friends and feels alone. He feels his future is impossible to see.
Jesse’s attitude has changed. He has gotten angrier and more depressed. He takes his anger and frustration with this disorder out on everyone in our family. Every day is a fight to get him to stay on track with his medicine. His depression has gotten to the point where he makes comments about wishing he was dead and hurting himself. We are seeking help for this. We are having to now find a family counselor and therapist to help us with him.
There are days where I cry several times throughout the day from being worried about my son or stressed out by his moods and attitudes. I call my husband crying while he is at work as a police officer, which I am sure does not help him at work.
I see this will be a lifelong battle for Jesse to find the will to go on and keep pushing through the obstacles which come in front of him. My husband and I fear for Jesse and his hopes for a prosperous future. We fight every day to stay strong and pray we can continue to be strong for our son. It is not easy. It is extremely difficult to deal with his depression, anxiety, and anger. We only hope for all our sakes, we can get a handle on his condition and beat this.
My husband and I are angry at the fact that Kaiser Permanente and its doctors know the side effects and possible reactions to the HPV shot. We feel they coerced us into believing it was the best thing for our son to prevent cancer in the future. We believe they did not properly warn us about the possible side effects or dangers.
Furthermore, my husband and I are extremely angry that they did not recognize, or even consider the possibility that Jesse’s symptoms reported during his doctor’s appointment after receiving the first shot might be an adverse reaction. When the second shot made his condition even worse, it still was not considered as a possible reaction to the vaccine. My husband further notes that when he asked one of the doctors if the shot could be the problem, the doctors quickly dismissed his question without even researching the possibility.
We are angry and feel Kaiser Permanente could have prevented our son from experiencing this illness in the first place. We believe Kaiser Permanente could have certainly prevented making his condition worse after the second injection.
We are worried Jesse’s condition will continue to get worse while doctors at Kaiser Permanente continue to downplay the potential causes.
We believe that if Jesse’s medical conditions were not triggered by HPV vaccines, the doctors at Kaiser Permanente have an obligation to at least try and discover the real cause so he can be treated effectively.
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“Using a couple of different search techniques in VAERS to try and find cases where people have already received both a COVID-19 vaccine and a flu shot since this recommendation was made, I found several cases where people apparently took the White House’s and the CDC’s advice (given in September, 2021) and got both vaccines together, and then suffered an adverse event.
The most common side effects these children who have received BOTH a flu shot and a COVID shot together at the same time are experiencing are dizziness and fainting within minutes of receiving both shots.”
“More than 55% of children ranging in age between 6 months and 2 years had a “systemic reaction” after their first dose of the Pfizer-BioNTech or Moderna COVID-19 vaccines, according to data released Sept. 1 by the Centers for Disease Control and Prevention (CDC).
In addition, almost 60% had a reaction to the second dose of the Moderna vaccine, in the CDC survey of more than 13,000 children.”
“The study featured a web-based survey of almost 40,000 individuals and found 42 percent of those who were menstruating reported unexpected heavy bleeding after receiving a COVID shot, while 66 percent of postmenopausal individuals reported breakthrough bleeding.1
The study included respondents aged 18 to 80 who were considered to be “fully” vaccinated.”
By Fiona Mackenzie, Cromdale, Grantown on Spey, Highlands of Scotland
Chelsea had 2 injections of Cervarix in the fall of 2012 before we went to Australia. A few months after we returned, we took her in for the third jab. The GP practice stated that they didn’t stock Cervarix any longer, but would check whether they could use Gardasil to finish the series. The next week in May 2013 she had her final vaccination, but it was Gardasil, not Cervarix. I did not question this because I trusted the doctor to protect her health. However, looking back I had so little information to go on at the time, I certainly should have questioned the decision to mix the two HPV vaccines. Until after the third injection, Chelsea was a normal healthy girl.
In late August of the same year, she started complaining of back pain. At first, I discounted it but 3 weeks later it had become so serious we had to take her back to the doctor. She was referred for physio, but it did not help. As time went on, Chelsea became increasingly disabled by her now constant back pain.
By late September she could not manage to get out of bed very often. School attendance became impossible as the pain spread to other joints in her body, mainly her neck, knees, and legs. We were now regular visitors to our local GP. Chelsea was referred for an urgent MRI. The results returned 5 days later showing mild edema on her anterior spinal column. Her GP suspected Lyme disease, but the test results came back negative.
On December 3rd, 2013, Chelsea’s GP admitted her to the Children’s Ward.Her symptoms at the time were a persistent pain in her back, lower and upper limbs, sleeping problems, loss of grip strength, paraesthesia (tingling, numbness) in her hands, intermittent tingling in her arms and legs, and no reflexes. During her 4 day stay, Chelsea had various specialists trying to find her reflexes but all were unable to do so. She also had a lumbar puncture, nerve conductive studies, and blood tests. The doctors reported that nothing of great interest was found.
By this time, Chelsea had not been in school for more than 3 months and was able to complete only small amounts of regular schoolwork at home.
The next few months Chelsea spent in bed. If I took her out, she would have to use either crutches or a wheelchair. She was in constant pain and being treated with a cocktail of Amitriptyline, Ibuprofen, Solphadol, and Dihydrocodeine.
By February 2014, she also developed headaches during which her eye became swollen so the GP added an anti-migraine drug (Pizotifen). Chelsea also struggled with dizziness and developed strange food intolerances.
Things finally started to improve a bit by April 2014 so Chelsea was able to return to school for 2 hours a day.
Later in April, she saw a different GP who changed her cocktail of drugs because the doctor felt Chelsea must be “drugged” and this was not helping her. Around the same time, she began taking advice from and being treated by a homeopath. Chelsea decided for herself that the only true way to detox was to stop her medications. This seemed possible because her symptoms decreased as she removed various prescription drugs from her daily medical cocktail.
By June, Chelsea had improved enough to be able to return to school for the mornings. Her most recent MRI scan showed that she no longer had swelling on her spine and her general health was somewhat improved. She was now in year 4 in school but had missed all of year 3 with the exception of a few hours. She still had daily pain and various strange symptoms, but she learned to cope with them. We were still having follow up medical appointments on a regular basis.
We never obtained an official diagnosis for Chelsea – which has hugely affected her life. Having no formal diagnosis made her feel like no one believed her symptoms were real. When the medical professionals kept telling her they could find nothing wrong, I am sure there were times when she questioned her own sanity.
There is no doubt in my mind that HPV vaccines played a part in changing my daughter from a healthy young girl into one who was constantly sick with a long journey to recovery. After all, the only change in her life prior to the appearance of all these new medical conditions was being vaccinated with Cervarix and Gardasil.
Fast forward three years to September 2018: Has my daughter recovered? Has Chelsea regained some sense of normality in her life? The answers to these questions are both “NO”!
Chelsea has had to battle mental health problems. I strongly believe these issues stem from the long-term chronic illness she had to endure during her teenage years. These years changed my daughter’s entire outlook on life. I rarely understand her reasoning with things. At times I despise her ways. However, writing her story has made me stop and think. The happy go lucky girl I had pre-vaccine is probably gone forever.
Would she have developed mental health problems had she not had the HPV vaccines? Unlikely, I expect. Spending so many of your teen years bed-bound with no real support from the medical community most definitely takes its toll. Chelsea was a bright scholar in primary. She was advanced a year in reading and took great pride in her 100% attendance record. She has the certificates to prove that. She walked out of high school in the 6th year with only a few Nat 5 as she had such poor attendance. She was so unwell she could not manage 1 higher.
Today she still suffers multiple symptoms, including endless lethargy and suicidal thoughts. Chelsea is now an unhappy 19-year-old without much focus. This young lady readily admits that during her illness she felt virtually abandoned by the medical profession.
As her mother, I cannot help but believe her current mental issues might not be so profound had she felt supported and cared for by those who were supposed to help her heal.
Thank you for taking the time to read this. Quite honestly, it was not at all easy to write the story of our life over the past few years. Doing so brought a flood of emotions back to the surface.
Instead of watching with pride as Chelsea worked to achieve her hopes and dreams, our family fought to cope with all of her new (and still unexplained) medical problems. Instead of celebrating the milestones teenage girls typically experience during high school, our family spent these precious years feeling abandoned and betrayed by a medical system we trusted to care for her health and well-being. We suffered along with Chelsea as her youthful enthusiasm turned to bitter despair. We would give anything to be able to turn back the hands of time.
Unfortunately, our family is not alone. Families around the world are experiencing similar events after HPV vaccinations.
When is it all going to end? When are people in the medical profession going to have the courage to stand up and fight for our children?
This article in it’s entirety, is compliments of www.SaneVax.org