RFK Jr.: ‘The Gaslighting of Lyme Patients Is Over’

This article has brought me so much joy. An answer to my prayers and many others infected with Lyme and their loved ones.

Please join me in saying prayers to protect those in the Trump administration taking bold steps to vastly improve the course of so many in pain.

RFK Jr.: ‘The Gaslighting of Lyme Patients Is Over’ by The Defender

HHS Secretary Robert F. Kennedy Jr. convened a Dec. 15 roundtable to mark a major shift in federal Lyme disease policy, pledging initiatives to improve diagnosis, treatment and Medicare coverage…

“For many years, this agency had a deliberate policy to refuse to engage with the Lyme community,” Kennedy said. Some officials dismissed patients’ symptoms as psychosomatic and referred them to psychiatric care. “You can’t imagine a worse combination,” he said.

‘Lives have been destroyed by this disease’

Lyme disease is a bacterial infection spread through tick bites. The Centers for Disease Control and Prevention estimates that 476,000 people are diagnosed and treated each year. Federal data suggest 5 to 7 million Americans have been infected over the past decade.

Current antibody-based tests often miss early and late-stage infections…

Read on Substack

 

TOUCHED BY LYME: “Two steps forward and one step back is progress.”#android#iPad#retweet

Nationally recognized specialists, including one of our Featured Doctors, Dr. Jodie Dashore, have additional updates in regards to Lyme disease and it’s co-infections.

Dr. Dashore’s son, Brian is a natural born leader and is sharing his story and reaching out to teen action groups across the state of New Jersey.

 

by Marjorie MacArthur

About 250 patients, caregivers, doctors, and interested citizens gathered in Monmouth County, New Jersey for an informative and hopeful Lyme Disease Education seminar April 25. Dr. Robert Bransfield, Dr. Jodie DaShore, and New Jersey Congressman Chris Smith joined Pat Smith of the Lyme Disease Association and the Kahn family members to share news and hope for residents struggling with tick-borne illnesses.

Dr. Bransfield, past president of ILADS and noted neuropsychiatrist, gave an overview of Lyme and co-infections. He discussed the intricacies of patient assessment and testing, described the two standards of care, and explained the plethora of treatment options.  Describing the political climate of tick-borne infections, Dr. Bransfield said, “Lyme disease may currently be the most controversial issue in medicine.” He emphasized the importance of “think[ing] outside the box with complex diseases.” He evoked laughter when…

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http://lymedisease.org