Gardasil: The Day Our Daughter’s Life Changed#Vaccines#iBelieve#Family

Crystal, and Skylee you are truly strong, and patient.  What examples you are of perseverance.

Thank you, for forging a trail to help those who are undergoing similar challenges or who will in the future.  One day, I am sure, the truth will prevail, and children, and their families will not be ravaged by these thoughtless, and inhumane acts.

Here is some music by a favorite artist of mine.  I find his music to have a healing element to it.  I hope you enjoy.  Your friend in truth, jen

By Crystal Butler, Chicopee Massachusetts

Gardasil changed my life

My daughter,  Skylee, was a healthy young lady prior to vaccination with Gardasil – she had the occasional cold but no major health issues.  Like many of her peers, she enjoyed music and going to concerts.  She enjoyed being a teenager simply hanging out with friends in and out of school.  All of this changed after she was vaccinated with Gardasil.

Skylee had her 13 year old physical on 21st August 2013. Her doctor recommended the Gardasil vaccine. I didn’t know much about it, so I texted my sister-in-law, who is a nurse, and asked her if she was going to get it for my niece. Her reply to me was yes, she had already had this vaccine.  Then, I asked the doctor who strongly recommended it. She said she was going to get it for her daughter as soon as she is old enough.  I figured it must be safe if they are both recommending it.

I was unaware of all the side effects that are listed in the prescribing information pamphlet that the doctors do not show patients as that comes inside the box containing the Gardasil vaccine. I was only aware of the minor side effects listed on the paper they hand out that lists pain, swelling itching and bruising at injection site, as well as fever, nausea, dizziness, vomiting and fainting.  I allowed her to get her first and only dose of the Gardasil vaccine.

Twelve days later, on the 2nd of September 2013 Skylee’s symptoms started. She had pain down her entire spine from the top of her neck to the bottom of her tailbone.  This pain increased as time went on.  Every couple of weeks she would get new symptoms, some lasting days, weeks and even months.

These symptoms included:

  • Pain through her whole back, including her arms and legs; shoulder pain
  • Chest pains, stomach pains
  • Headaches, stabbing pains in her head
  • The need to constantly crack her fingers, toes, ankles, back and neck
  • Chronic Fatigue; weakness; walking from class to class is too much sometimes; shortness of breath
  • Dizziness;  seeing green and red spots;  the words on the paper moving at times and not making sense; not being able to comprehend what she is reading;  constant need to move her eyes
  • Nausea, vomiting, and fever
  • Dry eyes, dry mouth
  • Light sensitivity, has to wears dark glasses inside the home and at school
  • blurred vision – at times unable to read or write because of dizziness, vision problems,  (teachers and her peers have to read and write for her)
  • Jittery, mood swings, fast talking, forgetfulness, irritable

There have also been some strange episodes when all of a sudden Skylee will have a blank stare and is unable to speak or walk. During these times she can hear and see what is happening around her, but unable to move.  She can laugh and is able to move her eyes and moan though, so we have found a way to communicate with her during these episodes.  The episodes last from 15 minutes to 2 hours. She has had numerous episodes in many places including the ER, school, home, in the car, and in the shower.

There was one time when we were taking her for bloodwork and Skylee was – well, out of it. We had to pick her up from the truck, put her in a wheelchair and then put her back into the truck the same way after the tests had finished.

All of the symptoms listed below she has experienced over the past year. Sometimes she will have only a few; sometimes it will be ten at once. Symptoms can last for hours, days, weeks, or even months. What is so strange is that the symptoms are always changing with new ones still showing up.

  • Burning eyes;
  • Hot flushes, night sweats, heavy periods;
  • Tightening of her chest; tingling in arms, legs, fingers and toes;
  • Poor balance; motion sickness;  room spins; difficulty in focussing;
  • Nose bleeds;  eye pains; easily bruised;
  • Legs, hands, feet and ankles cold to the touch;
  • And many of the symptoms identified above

The one symptom she has had every day after that one injection of Gardasil is the constant pain the entire length of her spine. The pain usually runs between 8 and 10 on the pain scale. When she takes Aleve or Ibuprofen the pain level goes down to a 6 on the pain scale. She has to take these medications daily.

Skylee has been to see numerous doctors including the Pediatrician who she has been with since birth, two different neurologists, a spine and sport facility, an orthopedic specialist, a urologist and eye doctors, a rheumatologist and physical therapist and a holistic practitioner.

She had to be taken to the ER on three different occasions.   She has been subjected to many tests including an MRI scan, X-rays, ultra-sound, full eye examinations and numerous visits to the laboratories for extensive blood work including testing for heavy metals.

The results of all of this testing and some official diagnoses are that Skylee has a complex cyst on her left kidney which will be monitored every 6 months; her EEG’s showed seizure like activity with very sharp brainwaves and spikes in her brainwaves.

They also discovered that she has an arachnoid cyst on her brain which has been followed up, and thankfully it is not growing.  This will continue to be followed up annually to make sure it does not increase in size.  We have been advised by the neurosurgeon that this cyst would cause a different set of symptoms, mainly a change in her coordination level.

Skylee also has vitamin D deficiency. The results from the heavy metal testing were high.

In addition to the above she has been diagnosed also with these disorders:

  • Chronic Fatigue Syndrome;
  • Chronic Pain Processing Disorder;
  • Depression – this has only come about because of all that has happened to Skylee since she was vaccinated with Gardasil;
  • Psychosomatic disorder – this is what they would prefer to be the official diagnosis.

Skylee has been on a few treatments and in a lot of cases these have been stopped because she had an “episode” at school not long after taking pain medication.  She has also been offered Prozac and Amitriptyline for Fibromyalgia and the latter for chronic pain/depression which we have refused.

Gardasil has changed Skylee’s life

She has missed 56 days of school since her injection and has gone in late a lot. She was dismissed from classes multiple times for not feeling well or having to leave school to attend doctors’ appointments.

Skylee often says she feels like she is 80 years old. She is unable to live life like a normal teenager.

She needs constant supervision due to her “episodes,” so she cannot go places with friends on her own.  Skylee cannot shower alone as being alone. Her ”episodes” make it impossible. I sleep with her in case she has an episode during her sleep.

Skylee’s biggest complaint through all of this is the inability to read and write due to the dizziness, head pressure, vision problems and stabbing pains in her head.  She says she would rather deal with daily pain rather than not being able to read. It is embarrassing for her to have to rely on her teachers or peers to read and sometimes write for her. She feels she is a burden to the other students and is holding them back from getting their own work done.

Through all of this she tries to keep her spirits up as much as possible and not let Gardasil get the better of her.

We are now in the process of getting Skylee a tutor through school so she can stay at home and still get her 9th grade education. She does not really want to stay home with a tutor. She would rather be at school with all of her friends. She is very outgoing and gets a long with everyone but we feel this is the safest option for her as of now.

Gardasil has affected our family

Because my daughter cannot be left alone due to the serious health issues she is experiencing, I have had to quit my job.  I had been with this company for almost 6 years.

My husband, Wayne, has also had to leave his work early and some days has missed work altogether.

I don’t sleep in bed with my husband as I now have to sleep with Skylee just in case she has an ”episode” in her sleep.

Skylee’s illness demands we sometimes pay more attention to her than her 11 year old brother (Sabastian) and I’m sure that must bother him.

I know it sometimes bothers Sabastian to see Skylee deal with all of the things she goes through. He too has had to miss school or be dismissed early because Skylee has taken unwell or had to go for a doctor’s appointment.

The Gardasil vaccine has changed Skylee’s life in so many ways and we do not know how many more symptoms will show up and change her life even more than it has already done.  Our whole family has been affected by this vaccine and all of our lives have been turned upside down that terrible day in 2013.

If only the doctors would recognize Skylee has gone from being a healthy young girl to an invalid when the only major change in her life occurred on the day she had that single shot of Gardasil.

Read this article in French here.

This article in it’s entirety, is complements of www.SaneVax.org

 

Gardasil Injury: Our daughter’s miraculous recovery#HPV#Vaccines#iBelieve

Rafaella, Kelly, and Ismar, this is such fantastic news!  I am so glad that Rafaella is healed, and was blessed with wonderful family support, and physicians who Listened, and acted swiftly.  Thank you for sharing your story so that others will benefit from your experience.  I have a little musical gift I would like to send your way, and I hope you enjoy.

love, jen

By Kelly Oliveira & Ismar Costa e Silva, Brazil

Rafaella: Full of Life

Our daughter, Rafaella, had always been a healthy girl. She loved to skate, swim, play ball, and dance. She was learning to play guitar when her Gardasil nightmare began.

Rafaella Barbosa de Oliveira lives in Resende, RJ, Brazil. She was thirteen years old when she got her first Gardasil shot – the recombinant quadrivalent vaccine against Human Papilloma Virus (type 6.11.16.18), batch J011180, validity 12-11-2015, on March 21, 2014, administered at her school. She was in the 9th class.

Two hours after the injection, she began to feel sharp pains in her right arm, the same arm in which she got the shot. She was taken home and her mother was contacted at work. Rafaella took a painkiller, but the pain did not diminish. During the evening and throughout the night, Rafaella still had a lot of pain.

Rafaella searched for help at the emergency facilities of a local hospital, where she was treated for tendinitis and taken back home. The pains were still stronger and her hand and arm were more swollen. The pain started radiating to her shoulder. Rafaella was taken to a specialist at an orthopedic clinic, where they suspected reflex sympathetic dystrophy, or Pain Syndrome.

The right arm and right hand were still very swollen, so we sought consultation with several doctors outside the city. Since some doctors do not recognize the problem, they didn’t have enough experience to treat it.

Time passed, and while Rafaella was searching for treatment in Sao Paulo, it was noticed that she had visual difficulties in addition to severe headaches and tingling in the feet. We took her for consultation with an ophthalmologist who noted papilledema, after an examination of fundus of eye. The next step was an urgent nuclear magnetic resonance (MRI).

Rafaella after Gardasil

Rafaella was hospitalized from June 27 to July 4. Her examination included a cerebrospinal fluid puncture and spinal column pressure measurements. She also had an MRI, a venography of the skull and an angiography. She was diagnosed with high intracranial pressure and a pseudo brain tumor.

She was diagnosed with at least 18 obstructed veins in the brain, spine, and between the lung and the heart and neck. The conclusion was a deficit in intracranial venous drainage, cervical and thoracic area.

An endovascular neurosurgeon out of our state did an emergency surgical procedure to remove the obstructions from her veins and arteries. Four days after this procedure, Rafaella was already walking normally again and had regained her sight/vision. The complex regional pain syndrome that was on her arm was also cured with this procedure.

28 days after she underwent this procedure my daughter was almost normal. She was walking and talking perfectly, and seeing normally. She was without any symptoms or pain, except for the dystrophy in the right arm still there. She still has a bit of tachycardia, but we hope that is going to normalize soon.

Another thing, after she took the HPV vaccine Rafaella had stopped menstruating. Recently she was also graced with the return of her period. All this improvement was made by the endovascular neurosurgeon.

Rafaella did a treatment; today she no longer needs a wheelchair for mobility. She no longer feels dizzy. She sleeps well now. Rafaella is far better today, but still needs to stay home because she developed chronic fatigue syndrome and will require another procedure and constant monitoring for some time.

In Portuguese:

Nossa filha, Rafaella, sempre foi uma menina saudável. Ela adorava andar de skate, nadar, jogar bola, e dança. Ela estava aprendendo a tocar guitarra, quando seu pesadelo Gardasil começou.

Rafaella Barbosa de Oliveira mora em Resende, RJ, Brasil. Ela tinha treze anos de idade, quando ela conseguiu seu primeiro tiro Gardasil – vacina recombinante quadrivalente contra o vírus do papiloma humano (tipo 6.11.16.18), J011180 lote, validade 2015/11/12, em 21 de março de 2014, administrada em sua escola. Ela estava na nona classe.

Duas horas após a injeção, ela começou a sentir fortes dores no braço direito, o mesmo braço em que ela recebeu a injeção. Ela foi levada para casa e sua mãe foi contactada no trabalho. Rafaella tomou um analgésico, mas a dor não diminuiu. Durante a tarde ea noite toda, Rafaella ainda tinha um monte de dor.

Rafaella procurou por ajuda em serviços de emergência de um hospital local, onde recebeu tratamento para tendinite e levado de volta para casa. As dores eram ainda mais forte e sua mão e braço inchado eram mais. A dor começou a irradiar para o ombro. Rafaella foi levada a um especialista em uma clínica ortopédica, onde suspeitaram, distrofia simpática reflexa, ou Síndrome da Dor.

O braço direito e mão direita ainda estava muito inchado, por isso buscamos consulta com vários médicos fora da cidade. Uma vez que alguns médicos não reconheceram o problema, eles não tinham nenhuma experiência disponível suficiente para tratá-la.

O tempo passou e, enquanto Rafaella estava à procura de tratamento em São Paulo, percebeu-se que ela tinha dificuldades além visual para fortes dores de cabeça e formigamento nos pés. Nós a levamos para a consulta com um oftalmologista que observou papiledema, depois do exame de fundo de olho de olho. O passo seguinte foi uma ressonância magnética nuclear de urgência (MRI).

Rafaella estava internado desde 27 junho – 4 julho O exame do líquido cefalorraquidiano incluído um pneu furado e medições de pressão coluna vertebral. Ela tinha uma ressonância magnética além disso, a venografia do crânio e uma angiografia. Ela foi diagnosticada com pressão intracraniana elevada e um pseudo tumor no cérebro.

Ela foi diagnosticada com pelo menos 18 veias obstruídas no cérebro, coluna vertebral, e entre o pulmão e o coração e pescoço. A descoberta foi que ela estava com déficit na drenagem venosa intracraniana, cervical e região torácica.

Um neurocirurgião endovascular em outro estado fez um procedimento, e quatro dias após este procedimento, Rafaella já passou a andar normalmente e recuperou a visão. A síndrome de dor regional complexa, que estava em seu braço essa também desapareceu como  procedimento.

28 dias depois que ela passou por este procedimento minha filha estava quase normal. Ela estava andando e falando perfeitamente, e vendo normalmente. Ela estava sem sintomas ou dor, exceto da  distrofia no braço direito, que ainda está lá. Ela ainda tem um pouco de taquicardia, mas esperamos que normalize isso em breve.

Outra coisa, depois que ela tomou a vacina contra o HPV Rafaella tinha parado de menstruar. Também recentemente, ela foi agraciada com o retorno de seu período. Tudo isto foi feito pela melhoria do procedimento feito.

Rafaella fez ao tratamento; hoje ela já não precisa de uma cadeira de rodas para a mobilidade. Ela já não sente tonturas. Ela dorme bem agora. Rafaella é muito melhor hoje, mas ainda precisa ficar em casa porque ela desenvolveu a síndrome da fadiga crônica e vai exigir um outro procedimento e monitoramento constante por algum tempo.

Em espanõl:

Nuestra hija, Rafaella, siempre había sido una niña sana. Le encantaba patinar, nadar, jugar a la pelota, y la danza. Estaba aprendiendo a tocar la guitarra, cuando su Gardasil pesadilla comenzó.

Rafaella Barbosa de Oliveira vive en Resende, RJ, Brasil. Ella tenía trece años cuando consiguió su primera dosis de Gardasil – la vacuna recombinante tetravalente contra el virus del papiloma humano (tipo 6.11.16.18), J011180 lote, validez 12.11.2015, el 21 de marzo de 2014, administrada en su escuela. Ella estaba en la clase noveno.

Dos horas después de la inyección, ella comenzó a sentir fuertes dolores en su brazo derecho, el mismo brazo en el que se puso la inyección. La llevaron a casa y su madre se puso en contacto en el trabajo. Rafaella tomó el analgésico, pero el dolor no disminuyó. Durante la tarde y toda la noche, Rafaella todavía tenía mucho dolor.

Rafaella buscó ayuda en los servicios de emergencia de un hospital local, donde fue atendida e recibió el diagnostico tendinitis y llevado de vuelta a casa. Los dolores eran aún más fuerte y la mano y el brazo hinchado más y más. El dolor comenzó irradia al hombro. Rafaella fue llevado a un especialista en una clínica ortopédica, la distrofia simpática refleja fué el diagnostico que sospechaban, la Síndrome de Dolor.

El brazo derecho y la mano derecha eran todavía muy hinchada, por lo que solicitaron consultas con varios médicos fuera de la ciudad. Debido a que algunos médicos no reconocen el problema, ellos no tenían suficiente experiencia para tratarlo.

Pasó el tiempo, y mientras Rafaella estaba buscando tratamiento en Sao Paulo, se notó que tenía dificultades visuales, además de fuertes dolores de cabeza y sensación de hormigueo en los pies. La llevamos a consulta con un oftalmólogo quien encontró edema de papila, después de un examen de fondo del ojo. El siguiente paso fue una resonancia magnética nuclear urgente (MRI).

Rafaella fue hospitalizado desde junio 27 a julio 4. Su examen incluyó la punción de líquido cefalorraquídeo y las mediciones de presión de la columna vertebral. También se hizo una resonancia magnética, la venografía del cráneo y una angiografía. Ella fue diagnosticada con hipertensión intracraneal y la pseudo tumor cerebral.

Ella fue diagnosticada con al menos 18 venas obstruidas en el cerebro, la columna vertebral y entre los pulmones y el corazón y el cuello. La conclusión fue un déficit en el drenaje intracraneal, cervical y zona venosa torácica.

Neurocirujano de otro ciudad hecho uno procedimiento, y después de 4 días, Rafaella ya estaba caminando de nuevo y había recuperado normalmente la vista / visión. El complejo síndrome de dolor regional que estaba en su brazo se curó también con este procedimiento.

28 días después se sometió ao un procedimiento mi hija era casi normal. Ella estaba caminando y hablando perfectamente, y ver normalmente. Ella fue sin ningún síntoma o dolor, con a excepción de la distrofia en el brazo derecho todavía allí. Ella todavía tiene un poco de taquicardia, pero esperamos que se va a normalizar pronto.

Otra cosa, después de que ella tomó la vacuna contra el VPH Rafaella había dejado de menstruar. Recientemente ella fue agraciada también con el regreso de su período. Todo esto mejora fue hecha por el procedimiento con un neurocirurjano.

Rafaella hizo el tratamiento; hoy ya no necesita una silla de ruedas para su movilidad. Ella siente el más largo mareado. Ella duerme bien ahora. Rafaella es mucho mejor hoy, pero todavía tiene que quedarse en casa porque ella desarrolló el síndrome de fatiga crónica y requiere otro procedimiento y monitoreo constante para algún equipo.

Kelly Oliveira & Ismar Costa e Silva (Parents of Rafaella).

This article in it’s entirety, is compliments of SaneVax.org